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Old 04-07-2015, 08:56 AM   #1
Amythestmama
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Exclamation New update page 4. Choroidal Osteoma, update post #47

Well, I saw a bright flashing area in my left eye Sunday evening and thought "yikes! I 'm getting a migraine!" but the severity never materialized, it just stayed a dull ache. I noticed that I couldn't see properly then, there was a darkness in my vision that made me keep blinking and rubbing at my eye. I slept Sunday night and rested alot Monday morning, kids didn't have school, everyone was just laying around mostly. I did read stories but found that difficult unless I kept my left eye closed. Then around 2pm, I decided to work on my sewing. I started marking a hem and I could not see what I was doing. I couldn't see the tape measure and my marking chalk. I tried and tried and could not see it. Then I got a little panicky and called the eye dr's office at Walmart and told them what was going on and they relayed that to the dr who said to come in immediately and he'd take a look between patients. He did that, dilated my eyes, then got very concerned when he saw that my eye was bleeding and there was alot of swelling in there. He said he didn't have the equipment to look at it in depth so he called around until he found another eye dr that did have the equipment and such to look at it better right away and then sent me there. I went there and they did more looking and pictures and dye testing. They told me I have an active macular hemmorage with edema, and a solid mass under the collection of bleeding vessels that they could not identify and said they weren't expecting to see that, they'd expected only fluid swelling. They said the level of macular degeneration(wet) was what they'd expect to see in someone 2-3 times my age. I have an appointment tomorrow morning with a retinal specialist to see what they can do.
Problems: We do not have insurance. Shots to stop the bleeding are $2000 each and must be repeated every 2 weeks at first I was told. We do not have money to get more than two shots, and that doesn't cover the dr visits.
I need my vision in order to sew so that I can keep up with my personal bills incurred from starting my sewing business. I need to find more work also to make those payments. I may need to go get a job that provides insurance in order to pay for this. I haven't worked outside the home in 10 years.
Long story short, I'm scared. I don't know what to expect or what to do. I'm not good at sitting around waiting to see what will happen. I see what needs done and get out there and figure out how to get it done ykwim?
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Old 04-07-2015, 09:06 AM   #2
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Default Re: Wet Macular Degeneration when you're only 35??

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Old 04-07-2015, 09:36 AM   #3
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Default Re: Wet Macular Degeneration when you're only 35??

Oh my goodness, that is startling, troubling news, to say the least I pray that all the treatments and bills will be worked out, and pray for God's guidance in all of this
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Old 04-07-2015, 09:54 AM   #4
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Default Re: Wet Macular Degeneration when you're only 35??

Wet AMD is exceedingly rare at your age but there are other things that could cause hemorrhaging. Please go see the specialist for his diagnosis and possible treatment plan. It is not the thing to let go and wait around. I would beg, steal or borrow the money for treat,ment.


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Old 04-07-2015, 10:14 AM   #5
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Default Re: Wet Macular Degeneration when you're only 35??

Praying for you.
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Old 04-07-2015, 07:12 PM   #6
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Default Re: Wet Macular Degeneration when you're only 35??

Praying
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Old 04-07-2015, 08:15 PM   #7
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Default Re: Wet Macular Degeneration when you're only 35??

My appointment is at 8am Wednesday. We belong to Christian Heathcare Ministries which isn't insurance, you just give a "gift" each month to be a member and then they'll help you pay the bills for certain things. I finally talked to them today and at first they were rather rude saying I Must have known about the eye problem before we enrolled in their program on December 31. When I said that's silly! I just turned 35 a few weeks ago! I've been healthy, never had any eye issues, very few other health issues and certainly none in the last 2-3 years that I've been under a Drs care for, this was a sudden and severe problem! And then they changed their tune and even prayed for me right then and said they'd put me on their prayer list and said they would help with the cost of treatment.
So a few more hours and maybe I'll have answers and help.
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Old 04-07-2015, 09:17 PM   #8
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Default Re: Wet Macular Degeneration when you're only 35??

Wow, that was rude. Sometimes things just come up! I am curious of the exact diagnosis the specialist gives you and the treatment plan. More
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Old 04-07-2015, 09:57 PM   #9
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Default Re: Wet Macular Degeneration when you're only 35??

What a shock! and
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Old 04-07-2015, 10:00 PM   #10
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Default Re: Wet Macular Degeneration when you're only 35??

How scary! Praying for you!
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Old 04-07-2015, 11:31 PM   #11
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Default Re: Wet Macular Degeneration when you're only 35??

Oh my! That is very scary! Praying!

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Old 04-08-2015, 05:14 AM   #12
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Default Re: Wet Macular Degeneration when you're only 35??

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Old 04-08-2015, 05:46 AM   #13
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Default Re: Wet Macular Degeneration when you're only 35??

Also, make sure you are for cash pricing/a discount.
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Old 04-08-2015, 09:56 AM   #14
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Default Re: Wet Macular Degeneration when you're only 35??

I'm home now. The specialist was very kind and nice. He looked and looked at my eyes. He said he doesn't think I have wet macular degeneration but that I have what appears to be a bone growth or some other solid mass growth in my eye with a lot of abnormal blood vessel growth. There are at least 3 layers of bleeding blood vessels over the growth. He says I need to go to his office in Omaha, Ne for more testing- blood tests, metabolic work up, in depth eye ultrasound, probably surgery. He said it appears to him I've been loosing vision in my left eye for some time without realizing it because my right eye has been compensating pretty well although it's showing signs of a lot of strain now. He says he doesn't know why the bleeding showed up only now, possibly bc the growth has increased. anyway. He personally assured me he'd do everything he could to keep the costs down since financial problems would be an issue.
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Old 04-08-2015, 09:58 AM   #15
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Default Re: Wet Macular Degeneration when you're only 35??

Definitely praying.
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