Why can't I keep normal vit D levels?

OliveJuice · 07-19-2012, 04:08 PM

My vitamin D just won't stay normal. In the two years since finding my severe deficiency, I am still not keeping vit D levels that are high enough. I've done 4 rounds of 50,000 units for 6 weeks and about to go back for my 5th round. In between the high dosing, my matinence has been 5,000 units a day. But for some reason it only works for a while, then I need big supplementation again.

Why is it not working? I had hyper parathyroidism. It had a lot to do with calcium and vit d. Once I got my vit d in good levels my para thyroid goes down to normal. (I also have hypo thyroidism, different gland and different issues though). I see and Endo for this. She doesn't seem to offer any answers.

Any thoughts?

Rabbit · 07-19-2012, 04:12 PM

It's because your thyroid is broken. With treatment, you get your numbers in line, but your thyroid cannot regulate vit D.

http://www.livestrong.com/article/50...-d-deficiency/

Thia · 07-19-2012, 04:40 PM

Very interesting. Almost a year ago I was diagnosed with a big deficiency. I haven't been retested since I started taking D. But I do notice a difference if I miss a few days of it. My thyroid tested just fine at the time. I'm going to read that article and see what I come up with.

OliveJuice · 07-19-2012, 05:26 PM

Quote:

Originally Posted by Rabbit

It's because your thyroid is broken. With treatment, you get your numbers in line, but your thyroid cannot regulate vit D.

http://www.livestrong.com/article/50...-d-deficiency/

Just to be clear- my vit d is because of thyroid NOT parathyroid? I have issues with both glands. Parathyroids only role is to regulate blood calcium.

Every doctor I've been to says my thyroid is normal. I convinced my primary to put me on thyroid meds based on my symptoms not blood work. I'm only on .025g

Rabbit · 07-19-2012, 05:32 PM

Quote:

Vitamin D and the thyroid gland can be factors in two specific conditions: Hashimoto's thyroiditis and autoimmune thyroid. Vitamin D helps boost the immune system and can help with autoimmune disorders. Hashimoto's thyroiditis is less commonly caused by hypoparathyroidism, or lower thyroid function. Treatment is thyroid hormone after being tested by a doctor. In hypoparathyroidism, calcium levels decrease and phosphorous levels rise. Vitamin D can be used along with calcium supplements to resolve issues.

That's all I know.

Ima LeShalosh · 07-19-2012, 05:45 PM

Beth, I am a thyroid patient (Hoshimoto's Disease) and my Vit D levels are way wonky! I can never keep them high enough. This is one reason that Thyroid patients deal with chronic sickness (ie catches everything that comes around). Thyroid causes Adrenal fatigue and that interferes with the Vit D and A absorption, storage and distribution.

If you are on the high end of "normal", then that may not be normal enough for you. Thyroid is not an exact science...it has to be treated individually and tailored to each person. A Dr. should listen to how the patient feels...not what their numbers look like.

ChristmasGirl · 08-15-2012, 09:12 PM

bumping this thread for discussion cause i'm having the same issue. i've treated vit. D insufficiency several times, numbers in the low 20's. This time, end of the summer, my numbers are at 13

...I've NEVER been that low before. I only have half of my thyroid and my TSH is at 1.67 which is great for me....

ArmsOfLove · 08-15-2012, 09:36 PM

I had to be on 100,000 IU's a WEEK for over a year before my levels would stay up. Then I was put on 4,000 IU's a DAY going forward. I wasn't being consistent with my dosage and went hyper parathyroid again. Now I'm doing it consistently. My naturopath said there is a rare condition that affects ability to store vitamin D and he figures I must have it.

ChristmasGirl · 08-16-2012, 04:50 AM

so what do i ask my dr. to check to see what my parathyroid levels are? i dont' know if i've ever had that checked

do you mind me asking how low your D got Crystal?

Mother of Sons · 08-16-2012, 09:18 AM

My parathyroid was never checked but my vitamin d level was 5. I took 150,000 iu a week and felt great but I lost my insurance and can't continue with the testing and treatments. All of my regular thyroid tests have been normal. I spend lots of time outside too but it's like my body just can't hang onto it.

This article has lots of info about gluten and vitamin d, parathyroid, vitamin d relation to calcium and a list of foods that have vitamin d

http://glutenfreeworks.com/blog/2010...eliac-disease/

teamommy · 08-16-2012, 09:25 AM

My endo hasn't done the huge doses with me. He feels that if you do that, it's a little harder to figure out what the correct maintenance dose is.

He bumps me up and then we recheck in a couple of months til we get it right.

In general, the rule is that 1000 IU per day will raise your level about 10 on the blood test. But individuals vary. And winter dose may be different from summer dose.

There is also still disagreement on what levels to shoot for. It's still a new area of research.

ArmsOfLove · 08-16-2012, 11:06 AM

Quote:

Originally Posted by ChristmasGirl

so what do i ask my dr. to check to see what my parathyroid levels are? i dont' know if i've ever had that checked

do you mind me asking how low your D got Crystal?

Not at all--when I was first tested it was 13

I don't know what it was this last time, but she said "still a little low".

and I have autoimmune thyroid (not officially dx as that--I think my endo just calls it sluggish

but the symptoms are connected to reactions to foods, etc.), hyperparathyroid, love vitamin D and low calcium, and most recently my natorapath added a support for my hypothalamus.

He explained that the hypothalamus is the taste buds of the brain--it is the area that tastes the blood and tells the brain and the glands what needs to be added or decreased, etc. Certain things can make the "taste" affected so that it isn't reading the blood correctly. Apparently this includes mold reactions, which includes but is not limited to, yeast overgrowth in the body.

ChristmasGirl · 08-16-2012, 02:43 PM

thanks for all the input! lots to think about and ask my physician about!

obviously what i've been doing (out in the sun and 1,000 IU/day) isn't enough since i'm at 13 at the end of the summer.

I just went Gluten Free, and am feeling WAY way better. I'm hoping that it will help with the D def. too....we shall see!

sweetpeasmommy · 08-18-2012, 06:40 AM

I read this tonight and according to it if you have autoimmune thyroid disease, you can never eat gluten again. http://chriskresser.com/the-gluten-thyroid-connection

ChristmasGirl · 08-18-2012, 06:50 AM

wow, that's interesting Amy! I'll have to pass that on to some friends.

I don't have autoimmune thyroid issues (i had a nodule on one lobe, thus only have half my thyroid now) but that is really good information, thanks!

07-19-2012, 04:08 PM	#1
OliveJuice Rose Garden Lord, I want to feel with Your heart, See the world through Your eyes Join Date: Apr 2005 Location: Near Boston, MA Posts: 6,250	Why can't I keep normal vit D levels? My vitamin D just won't stay normal. In the two years since finding my severe deficiency, I am still not keeping vit D levels that are high enough. I've done 4 rounds of 50,000 units for 6 weeks and about to go back for my 5th round. In between the high dosing, my matinence has been 5,000 units a day. But for some reason it only works for a while, then I need big supplementation again. Why is it not working? I had hyper parathyroidism. It had a lot to do with calcium and vit d. Once I got my vit d in good levels my para thyroid goes down to normal. (I also have hypo thyroidism, different gland and different issues though). I see and Endo for this. She doesn't seem to offer any answers. Any thoughts? __________________ ~Beth~ Blessed to: nurture Derek(17) Joshua(11) Levi(7) cherish Natalie(born/died full term 9-13-99) Calleigh(m/c 2-2001) & (6-2012) Working hard at & praying for God to restore my 16 year marriage to my first love Michael

07-19-2012, 04:12 PM	#2
Rabbit Rose Garden Join Date: Jul 2006 Location: Memphis Posts: 41,655	Re: Why can't I keep normal vit D levels? It's because your thyroid is broken. With treatment, you get your numbers in line, but your thyroid cannot regulate vit D. http://www.livestrong.com/article/50...-d-deficiency/ __________________ Natalie wife to my Owl (Joshua, since 02/97) mother to my Lumpy (Samantha, 10/04) my Tigger (Simon, 04/06) and my Roo (Seth, 05/09) Coping with ADHD, OCD, OCPD, PTSD, IUGR, Ectodermal Dysplasia, and food intolerances. Facebook

07-19-2012, 04:40 PM	#3
Thia Rose Trellis Join Date: Mar 2005 Location: NY Posts: 3,410	Re: Why can't I keep normal vit D levels? Very interesting. Almost a year ago I was diagnosed with a big deficiency. I haven't been retested since I started taking D. But I do notice a difference if I miss a few days of it. My thyroid tested just fine at the time. I'm going to read that article and see what I come up with. __________________ ~Thia~ Wife & Mother Dd Oct 04~Ds Aug 06~Dd Aug 08~Dd Aug 10

07-19-2012, 05:45 PM	#6
Ima LeShalosh Rose Garden Living and Loving..Against the Stream Join Date: Apr 2007 Location: Between reality and hope Posts: 10,062	Re: Why can't I keep normal vit D levels? Beth, I am a thyroid patient (Hoshimoto's Disease) and my Vit D levels are way wonky! I can never keep them high enough. This is one reason that Thyroid patients deal with chronic sickness (ie catches everything that comes around). Thyroid causes Adrenal fatigue and that interferes with the Vit D and A absorption, storage and distribution. If you are on the high end of "normal", then that may not be normal enough for you. Thyroid is not an exact science...it has to be treated individually and tailored to each person. A Dr. should listen to how the patient feels...not what their numbers look like. __________________ Chelle Jewish believer in Y'shua an INTP to the letter! My Love:דודי (my Beloved) My Little Loves:לוחם (Warrior 2001) ~ אוֹמֶץ (Heart 2005) ~ אש (Fire 2007) My Photography Blog:Red Door Photography My Natural Living Page:Against the Stream

08-15-2012, 09:12 PM	#7
ChristmasGirl Rose Garden yellow is my happy color Join Date: Mar 2005 Posts: 9,173	Re: Why can't I keep normal vit D levels? bumping this thread for discussion cause i'm having the same issue. i've treated vit. D insufficiency several times, numbers in the low 20's. This time, end of the summer, my numbers are at 13 ...I've NEVER been that low before. I only have half of my thyroid and my TSH is at 1.67 which is great for me.... __________________ Warmly, Susie ❀wife to my sweetie for 16 years ❀mom to Elizabeth (14) and Eli (10) ❀Post-it note Queen, Preschool Princess, Crochet Commoner, De-clutter Bug

08-15-2012, 09:36 PM	#8
ArmsOfLove Administrator Join Date: Mar 2005 Posts: 77,753	Re: Why can't I keep normal vit D levels? I had to be on 100,000 IU's a WEEK for over a year before my levels would stay up. Then I was put on 4,000 IU's a DAY going forward. I wasn't being consistent with my dosage and went hyper parathyroid again. Now I'm doing it consistently. My naturopath said there is a rare condition that affects ability to store vitamin D and he figures I must have it. __________________ I need your grace, to remind me, to find my own Snow Patrol, "Chasing Cars" Learn about my family Author of Biblical Parenting and Grace-Based Living Founder of Arms of Love Family Fellowship Pastor, Shema Congregation--a Nazarene congregation devoted to Messianic fellowship and Hebraic study

08-16-2012, 04:50 AM	#9
ChristmasGirl Rose Garden yellow is my happy color Join Date: Mar 2005 Posts: 9,173	Re: Why can't I keep normal vit D levels? so what do i ask my dr. to check to see what my parathyroid levels are? i dont' know if i've ever had that checked do you mind me asking how low your D got Crystal? __________________ Warmly, Susie ❀wife to my sweetie for 16 years ❀mom to Elizabeth (14) and Eli (10) ❀Post-it note Queen, Preschool Princess, Crochet Commoner, De-clutter Bug

08-16-2012, 09:18 AM	#10
Mother of Sons Rose Garden Join Date: Mar 2005 Posts: 20,256	Re: Why can't I keep normal vit D levels? My parathyroid was never checked but my vitamin d level was 5. I took 150,000 iu a week and felt great but I lost my insurance and can't continue with the testing and treatments. All of my regular thyroid tests have been normal. I spend lots of time outside too but it's like my body just can't hang onto it. This article has lots of info about gluten and vitamin d, parathyroid, vitamin d relation to calcium and a list of foods that have vitamin d http://glutenfreeworks.com/blog/2010...eliac-disease/ __________________ “Let the wife make her husband glad to come home and let him make her sorry to see him leave.” - Martin Luther Last edited by Mother of Sons; 08-16-2012 at 09:24 AM.

08-16-2012, 09:25 AM	#11
teamommy Rose Garden Join Date: Sep 2006 Posts: 4,065	Re: Why can't I keep normal vit D levels? My endo hasn't done the huge doses with me. He feels that if you do that, it's a little harder to figure out what the correct maintenance dose is. He bumps me up and then we recheck in a couple of months til we get it right. In general, the rule is that 1000 IU per day will raise your level about 10 on the blood test. But individuals vary. And winter dose may be different from summer dose. There is also still disagreement on what levels to shoot for. It's still a new area of research. __________________

08-16-2012, 02:43 PM	#13
ChristmasGirl Rose Garden yellow is my happy color Join Date: Mar 2005 Posts: 9,173	Re: Why can't I keep normal vit D levels? thanks for all the input! lots to think about and ask my physician about! obviously what i've been doing (out in the sun and 1,000 IU/day) isn't enough since i'm at 13 at the end of the summer. I just went Gluten Free, and am feeling WAY way better. I'm hoping that it will help with the D def. too....we shall see! __________________ Warmly, Susie ❀wife to my sweetie for 16 years ❀mom to Elizabeth (14) and Eli (10) ❀Post-it note Queen, Preschool Princess, Crochet Commoner, De-clutter Bug

08-18-2012, 06:40 AM	#14
sweetpeasmommy Moderator Join Date: Aug 2008 Location: MO Posts: 19,267	Re: Why can't I keep normal vit D levels? I read this tonight and according to it if you have autoimmune thyroid disease, you can never eat gluten again. http://chriskresser.com/the-gluten-thyroid-connection __________________ Amy ENFP Brandisher of the Greasy Spoon of Gut Healing Wife to ISTJ DH Mom to Sweet Boy 10/2004 Healing from autism, anxiety and food allergies on GAPS Praying

08-18-2012, 06:50 AM	#15
ChristmasGirl Rose Garden yellow is my happy color Join Date: Mar 2005 Posts: 9,173	Re: Why can't I keep normal vit D levels? wow, that's interesting Amy! I'll have to pass that on to some friends. I don't have autoimmune thyroid issues (i had a nodule on one lobe, thus only have half my thyroid now) but that is really good information, thanks! __________________ Warmly, Susie ❀wife to my sweetie for 16 years ❀mom to Elizabeth (14) and Eli (10) ❀Post-it note Queen, Preschool Princess, Crochet Commoner, De-clutter Bug

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