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I found something!!!!

IP6, a form of inositol, made from rice bran. Just ordered. It arrives Friday. I'm hoping this helps! The chelating drug he's been on since I started this thread doesn't work very well at all.

---------- Post added at 10:14 AM ---------- Previous post was at 10:13 AM ----------

Quote:

Originally Posted by Soliloquy

He did end up going on the drug.

So far, "side" effects are mild. We're praying this is a short-term need and he can stop taking it soon.

He's been able to go off it for a week or so at a time, then he needs to go right back on it. And it's very SLOW at getting that ferritin level down.

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