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Old 06-22-2018, 12:53 PM   #1
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Question Reducing ferritin levels

I know it's a long shot but has anyone reduced their ferritin levels? DH has high ferritin from blood transfusions. The recommended drug has a lot of side effects.

We are already doing some of the things in this article. Turmeric, milk thistle, foods high in sulphur, tea, raw milk.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3821171/

and I'm planning to add in organic soy protein powder.

I have to be careful with herbs as some are immune stimulants and he has a history of life-threatening auto-immune disease.
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Old 06-22-2018, 01:11 PM   #2
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Default Re: Reducing ferritin levels

no, I do not. I would recommend emailing Matthew Wood though if you think it would be helpful. I know when I was in desperate need of herbal advice he was quite helpful.
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Old 06-22-2018, 02:02 PM   #3
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Default Re: Reducing ferritin levels

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Originally Posted by sprout View Post
no, I do not. I would recommend emailing Matthew Wood though if you think it would be helpful. I know when I was in desperate need of herbal advice he was quite helpful.
He e-mailed me back too.
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Old 06-22-2018, 04:51 PM   #4
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Default Re: Reducing ferritin levels

I used to live a few hours from him.

Thank you, I will see if he has any suggestions. And I added his books to my wishlist!
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Old 06-22-2018, 05:55 PM   #5
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Default Re: Reducing ferritin levels

The only thing I know is donating blood, which I am assuming is a no go in this case.
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Old 06-22-2018, 07:44 PM   #6
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Default Re: Reducing ferritin levels

Yeah, he needs blood transfusions so the cause won't go away.

---------- Post added at 07:44 PM ---------- Previous post was at 07:42 PM ----------

Oddly enough, his dad has hemachromatosis and donates blood when he needs to. But different blood type than DH. (DH doesn't have the gene for hemachromatosis.)
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Old 10-12-2020, 11:14 AM   #7
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Default Re: Reducing ferritin levels

I found something!!!!

IP6, a form of inositol, made from rice bran. Just ordered. It arrives Friday. I'm hoping this helps! The chelating drug he's been on since I started this thread doesn't work very well at all.

---------- Post added at 10:14 AM ---------- Previous post was at 10:13 AM ----------

Quote:
Originally Posted by Soliloquy View Post
He did end up going on the drug. So far, "side" effects are mild. We're praying this is a short-term need and he can stop taking it soon.
He's been able to go off it for a week or so at a time, then he needs to go right back on it. And it's very SLOW at getting that ferritin level down.
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Old 10-12-2020, 04:10 PM   #8
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Default Re: Reducing ferritin levels

I’m praying, my friend. I hope this works.

Did you ever email Matthew Wood?
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Old 10-12-2020, 04:12 PM   #9
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Default Re: Reducing ferritin levels

No, I can't remember why. I think I just forgot.
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Old 02-13-2021, 10:18 PM   #10
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Default Re: Reducing ferritin levels

So I actually found something that reduces ferritin. IP6. It's a form of inositol. Made from rice bran. Chelates iron out of the body. Recommended for people with high iron, post-menopausal women, older men, etc. High iron is a risk factor for cancer.

Turmeric extract is also supposed to be helpful.

Drinking coffee or tea with meals helps reduce absorption of iron.

But IP6 is the best thing we've found so far.

DH has been on Jadenu off and on since my first post. That drug is really hard on the kidneys and some people go suddenly into kidney failure while on it. Dh's labs have dipped into the "kidney disease" zone but go back to normal when he stopped the drug. His hematologist has him take jadenu as long as his kidneys seem to be doing ok, then stop when they're not. And then start again. And Jadenu is not even very effective. His ferritin is still much too high, even when he's taking it.

I'm hoping IP6 works better. It's certainly much safer than Jadenu.
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Old 02-13-2021, 11:10 PM   #11
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Default Re: Reducing ferritin levels

Continued prayers for your DH
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Old 02-13-2021, 11:25 PM   #12
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Default Re: Reducing ferritin levels

Prayers

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Old 10-17-2021, 09:12 AM   #13
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Default Re: Reducing ferritin levels

How is your DH?


I'm reading about crazy high ferritin with covid.
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Old 10-17-2021, 10:47 PM   #14
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Default Re: Reducing ferritin levels

Quote:
Originally Posted by ECingMama View Post
How is your DH?


I'm reading about crazy high ferritin with covid.
It's frustrating because they only check his ferritin a few times a year. (He gets labs done every 2 weeks.) It takes a LONG time for it to come down, I think that's why. However, taking IP-6 Gold appears to be just as effective, perhaps a bit more, than the nasty med that was hard on his kidneys. Highly recommend anyone with high ferritin try it. Apparently, high ferritin is not uncommon in men over 50, even without any blood/bone marrow disease. After menopause, women can be affected by high ferritin, too. Anyone with unexplained hair loss could consider having their ferritin levels checked, also.
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Old 10-18-2021, 05:42 AM   #15
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Default Re: Reducing ferritin levels

Glad it is helping! Slow progress is frustrating!

Have you done anything with low iron diet? Or if he is going to have something with iron, then make sure he has something with calcium to decrease ieon absorption. I know the blood transfusions are the main issue, but that may help.
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